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On Friday, October 1, 2010 in Philadelphia, PA, the LDASEPA will hold an Advocates Workshop.  Taking place at the Hyatt on the day before the national Lyme Disease Association/Columbia 2010 Scientific Conference, the Advocates Workshop will provide advocates, new and old, with a wonderful opportunity to network, to learn strategies from speakers, and from each other.

Advocacy training days have been held the past two years, sponsored by CALDA, and have been very well received.  New ideas are shared, and new projects begun, with attendees coming away from it enriched by the experience.

I am privileged to be participating in this year’s Advocates Workshop, speaking on the topic “The Personal Side of Patient Support:  A Guide for Lyme Leaders.”

The Lyme Disease Association and Affiliate groups continue to lead the way in patient advocacy, as they have for two decades.  I look forward to being a part of this important program.

On Saturday, June 5th, 2010, I will be joining Dr. Ann Corson in a program sponsored by the LDA of Southeastern PA.  I will be speaking on the topic “Lyme Disease Patients and Families: Meeting Challenges and Overcoming Obstacles.”  The program will take place at Bucks County Community College, Newtown Campus, at 1:00pm.

For further information, check the website:

University of New Haven will be hosting a Lyme disease symposium on Saturday, May 8th, at Dodd’s Auditorium – University of New Haven. The morning session will be devoted to new and exciting research currently being undertaken, to explore the mysteries of Borrelia burgdorferi, the Lyme disease bacteria. Topics include: the antibiotics sensitivity of the different formations (spirochete, cyst and biofilm) of Borrelia burgdorferi, the ultrastructure and the molecular components of the recently discovered Borrelia biofilm formation, comparison of findings in syphilis and Lyme disease related studies, the role of mitochondria in chronic Lyme disease patients, novel co-infection findings in tick-borne diseases and a discussion on the potential role of XMRV virus in chronic diseases.

The afternoon session will focus on pediatric patients, with speakers addressing multiple issues affecting children, the complexity of medical treatment options, as well as factors that impact their functioning – cognitive and executive functioning impairments, social and emotional growth in the face of their often debilitating symptoms.

The keynote speaker for the symposium will be Dr. Charles Ray Jones and two very special guests will attend: Polly Murray and Dr. Alan MacDonald. Dr. MacDonald will receive a lifetime achievement award. Details and registration info are here.

A printable pdf version of Symposium’s brochure is available. Learn more about Lyme Disease Research at the University of New Haven here.

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